Monday, February 22, 2010

Jamie's Story

In June 2008, Jamie woke up early one morning and joined me in her office working.  Within five minutes of falling back to sleep on the couch, Jamie started making odd noises.  I looked over and saw what looked like a right side stroke which scared me beyond belief.  She was making such an odd noise, her right eye and right side of her mouth were twitching and she was unresponsive.  I called for her older sister to help me and within minutes, she was up but drooling uncontrollably and incoherent.  This was a day that I would never forget and would begin our journey in understanding all about epilepsy, seizures, treatment and more. 

This picture was taken right before her first seizure and diagnosis of Benign Rolandic Epilepsy (BRE).  BRE is one of the luckier ones to get if anyone has to get it as most outgrow it.  After the first seizure, it took months and months to find the right medication and doses.  It was extremely scary waiting to see if the "big one" would ever hit and thankfully, we have not endured any full clonic seizures.

Due to Jamie's epilepsy, she has suffered some developmental delays whether it was due to the medicine, the condition or other factors, she found herself repeating kindergarten.  This year is her year and with the help of a wonderful teacher, she is reading and writing journal entries among many other things.  Mrs. Huff is golden in pushing for higher standards and has taught Jamie a lot.

This picture is the product of very thoughtful people bringing gifts to children at the Medical College of Georgia's Children's Hospital at the neurology ward.  Jamie had to have another sleep study right before Christmas in 2008 (6 months post diagnosis).  Wonderful volunteers brought in gifts, food cards, snacks and even dogs to allow the children to pet.  One local pastor brought in snacks due to his own plight and understanding how parents don't like to leave their children's bedside.  My other daughter has severe pulmonary/allergy issues and was diagnosed two weeks after Jamie's so I've spent countless days ping ponging between the two with life threatening issues to include times when my husband was deployed to the Middle East.  Having that extra care was what brought tears to my eyes from complete strangers and I want Jamie to experience it by paying it forward.

Thanks for visiting!


  1. What a cutie!! I just got your button to post on my blog :)

  2. Thank you, Cynthia! I showed her the blog and she was so excited and now keeps talking about her next set of toys she will buy! :)

  3. Judy, it's wonderful you're sharing your family's journey. I'm sure many will find answers and comfort here. Jamie is learning so much at a young age that most adults take a lifetime to grasp - that life is truly about serving others. I commend you for instilling such important values in your girls. Many lives will be changed, as it did for Jamie.

    Thank you for inspiring me.

  4. Our organization will be hosting a booth for the 100 Mile Club ( which is another great group, on Saturday, March 6. We will be giving away 100 pairs of new pajamas, toothbrushes, and books that day. Inside our pajama packs we are getting together some information on some of the other causes that are close to our heart. If you can get me some information on Angels 4 Epilepsy I would love to include that in our packs. It could be small flyers or business cards with the blog site. Thought maybe this could help spread what Jamie is doing over here in Southern California :) Our other causes are and Along with the C28 store If you're interested email me :) If you can't this time maybe we can do something in the future. I really admire Jamie and want to help in any way I can :)

  5. Thank you for the info,But I must point out something.even a person outgrows this type of epilsy.A different form my show up inlater life.I am proof of that.I outgrew my seizures and they came back.At first I would just go blank fo a second or two.

  6. Hi Mike, I had no idea and I pray it does disappear for life for her. I had no idea how scary epilepsy is until I was faced with it via her. Are you on meds?

  7. Hi Cynthia,
    I was so used to my other blog sending me e-mails with comments and didn't realize you sent me one and now I know it's late but I hope I can catch you on the next one. I admire you for all you do for the others! It just takes one to make a change! Thank you!