One couple who lost their four year son to SUDEP is using his memory to raise awareness, educate others and find research dollars to help other epileptics. It's an inspiring story that needs to be shared as many do not know what SUDEP and the plight that epileptics must endure.
Here are some excerpts from the story and you can click here to read the entire story.
Epilepsy claims as many as 50,000 lives each year — grim statistics Mike and Mariann Stanton were unaware of until their 4-year-old son, Danny, became one of them.
To get across the message that they’d never been told — epileptic seizures can be deadly — the Stantons have put up billboards, created more than 8,000 brochures for doctors’ offices, hospitals and families; held fund-raisers to boost awareness and research dollars; and created a foundation that’s gotten more than 10,000 Facebook followers.
More than 3 million Americans have epilepsy, recurrent seizures caused by electrical disturbances in the brain. About 40 percent have seizures hard to control with medicine. They face the highest SUDEP risk, though anyone with epilepsy is at risk.
SUDEP is thought to claim 3,000 lives each year nationwide, but the actual toll is likely higher, said Dr. Elson So, a Mayo Clinic neurologist and leading SUDEP expert who learned about the upcoming research from Chicago colleagues and has offered to take part.